MEDIX, God. 18 Br. 101/102  •  Autorski pregled  •  Neurologija HR ENG

Hrvatska udruga za Alzheimerovu bolest – od osnivanja do punopravnog članstva u međunarodnim krovnim asocijacijamaAlzheimer Croatia – from founding to the full membership in umbrella international organizations

Ninoslav Mimica, Zdravko Pecotić, Goran Šimić, Mira Dajčić, Nevenka Mimica, Morana Trešćec-Ivičić, Paola Presečki, Nataša Klepac, B

Hrvatska udruga za Alzheimerovu bolest (HUAB) osnovana je 1999. godine u Zagrebu, na inicijativu njegovatelja oboljelih, a uz pomoć stručnjaka. HUAB aktivno i kontinuirano radi na edukaciji ciljne i opće populacije, nastoji podići svjesnost o bolesti te se bori protiv stigme koju bolest još uvijek nosi. Aktivnosti koje HUAB provodi su ponajprije savjetodavne, i to preko SOS-linije, ali i kroz Savjetovalište u sklopu svoga prostora u Vlaškoj 24 u Zagrebu. HUAB nastoji redovito tiskati edukativni materijal, brošure, letke, održavati javne tribine, predavanja, biti prisutan u medijima, a također organizira i stručne konferencije i kongrese te na taj način dovodi u najbliži kontakt brojne vrhunske stručnjake i pružatelje usluga oboljelim članovima. Punopravnim sudjelovanjem u krovnim udrugama kao što su Alzheimer’s Disease International, Alzheimer Europe i European Brain Council, HUAB kreira i globalnu politiku skrbi o oboljelima od AB-a i njihovim obiteljima. 

Ključne riječi:
Alzheimerova bolest; bolesnik; demencija; Hrvatska; njegovatelj

Članak u cijelosti pročitajte u tiskanom izdanju MEDIX, God. 18 Br. 101/102

Alzheimer Croatia (AC), former Alzheimer Disease Societies Croatia (ADSC), was founded in Zagreb in 1999 upon the initiative of caregivers of people with dementia (PWD) and with the support from healthcare professionals. The main goal of AC is to help PWD, their families and careers, but also to fight against the stigma of the disease and educate target and general population. Activities provided by the AC include counselling, SOS-line and weekly meetings at the Zagreb office in Vlaška 24. The AC publishes educational material including booklets and leaflets, organises lectures and public discussions, provides information for the media and organises professional conferences and congresses, gathering various experts and caregivers and other persons involved in caring for the PWD members. After becoming a full member of the umbrella associations such as Alzheimer’s Disease International, Alzheimer Europe and European Brain Council, the AC has the opportunity to participate in creation of global politics of caring for PWDs and their families. 

Key words:
Alzheimer disease; caregivers; Croatia; dementia; patients